These are the posts that I hate writing. Many of you probably remember that Lily came down with RSV this last winter and that it effected her heart. She just had another check up and we were hoping that the those problems would cease to exist, unfortunately things have gotten worse. I don't want to spend a great deal of time explaining it, I'm still at the stage that it's hard to talk about. The doctors are definitely concerned about Lily's current heart issues and a little puzzled by them. One of the doctors said that Lily isn't in immediate danger, however her future is unclear. I'm sorry I know I'm being kind of vague, but everything is still spinning around in my head. Here are 2 facts: #1. Lily has a bad heart. #2 Lily is a fighter. There is still a chance that Lily's heart will go back to functioning normally, and in that case she has a great chance at living a long and healthy life. There is also a chance that her heart will continue to do crazy things that puzzle brilliant doctors, but they will find a way to fix it and she will have a great chance at living a long and healthy life. Then there is the chance that her heart will continue to have problems and well I don't even think I can write the outcome of that. I can't for one second imagine my life without Lily. Yesterday was a sad day for our little family. However, we have overcome worse obstacles and I know we can beat this. I am confident that it will all work out. I would really appreciate it if you could remember Lily in your thoughts and prayers. She's a good kid and she deserves to live a happy, healthy life.

Lily has made me realize so many things about living life. You can't spend time dwelling on the negative, you have to look at the positive. There are so many things that you can complain about, but why complain. It only makes you more miserable and the people around you miserable. Spending time with family is one of the best ways to spend our time. My kids and my husband mean everything to me and I would rather spend a night just hanging out at home with them then anywhere else. Who cares if I have dirty dishes in the sink. I will get to them eventually, I would rather play with Lily and Harrison. Although I must say I have been working on trying to get the dishes done and it's getting better. If Lily helps me then we get to do it together and it's kind of fun. She loves to help me clean. One of the most important things I have learned is that I can't take the time I have with my kids for granted. This time is so precious. When they wake up in the middle of the night I want to be there to comfort them. When they fall and get hurt I want to be the one to make it feel better. When they are having a great time, I want to be there having a great time with them. I want to be there to make sure that they are being taught good lessons, and what I mean is the good and the bad. You throw toys down the stairs, "So Sad", you lose your toys. Most important, I want my kids to know how much they are loved and how important they are to me and Tag. I hope that Lily knows that all of her thoughts and feelings are so important to me. We are trying so hard to raise good kids and if at the end of the day they feel loved then that is good enough for me. I realize how blessed I am. I have two incredible children and a wonderful husband who loves me. I don't know what the future holds for my kids, but I know that we have today and each day that I'm given with them is a blessing.

Lily is about to turn 4, and each birthday we take a special treat to the hospital. We made over 6 dozen cookies and brought them to the hospital for the staff working both in the Cardiac Intensive Care Unit and the Heart Institute.



Karrie had Lily run the halls to get her heart rate up. Lily loves any excuse to run around. And she got to do it with her shirt off!





I am so grateful for the Denver Children's Hospital. We have received such incredible care. We really love Karrie and the doctors who are all so invested in Lily. They have made our hard times a little easier to get through.